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Tuesday, September 25, 2012

Getting Used To It is Not an Option

It seems like the one thing that all people with a TBI can agree on, is that there are good days and bad days, mentally and physically. Movement, even agility, is almost easy on good days.; hope is limitless. Then there are other days where my limbs feel as though they weigh 1000 pounds each, and movement is almost painfully hard and my balance is so off that I can barely stand still when I want, and I am never going to make progress. I will say, my bad days aren't as bad, and there are fewer of them.

Sometimes, I wonder if I am just used to the bad days so they don't seem as hard.

I don't want to be used to this at all. I don't want to get used to not feeling anything with my right hand. I don't if there is a know a rehab that fixes that. Is there some voodoo that I can do to get my nerves to heal? Please tell me if there is. I refuse to get used to the fact that when I lay down I get so dizzy that my stomach hurts and turns. They said I don't have vertigo, so what is it? How do I make it stop? I won't get used to the fact that I can barely walk in a straight line and move without being awkward.


I'm terrified of someday accepting this as normal. I can't believe that this is all I can do. I know it's been 3 years. That seems like an awful long time to try and make this all a thing of the past. I work pretty hard to try and make this all go away, and sometimes, it doesn't seem like anything is happening. Until something does happen..

These days it's nothing big. Recently my improvements aren't as noticeable. In the past I'd celebrate tying my shoe, or walking 1000 yards, trying my shoe, or getting rid of my wheel chair. Now the improvements are much smaller. But I notice (usually; it's nice when someone points it out to me). It might just be gripping something better, or noticing that my balance is better while reaching above my head. Those little things make me continue my hard work.  And so I walk to the gym again, or type on my big embarrassing key board.

This process is BY FAR the slowest, most frustrating, tedious, pain in the ass thing I have EVER done. But I REFUSE to get used to it, or just deal with it, or let it win. I might have bad days once in a while but never do I think that I have a bad life. I need to keep that in mind when I do have a bad day, because those are inevitable.

1 comment:

  1. Linds, acupuncture and yoga...tons of healing available in the alternative medicine world. I've arranged for one of my good friends to give you a private yoga lesson, if you are interested.

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